It Just Takes One
One Drop Rule Rare Disease Foundation
Find your way to resilient medical care for your rare disease based on your complete identity (and not a racial stereotype).
Take the first step for an equitable rare disease journey
Like many Americans whose families came to the United States more than a hundred years ago, I am a genetically diverse human being with genes from more than one continent. Although I may not look like a Northern European on the outside, I carry enough of their genetic material to have a rare disease unique to their gene pool.
For over six decades, my doctors and caregivers failed to provide me with a proper diagnosis because I didn’t look like the typical mitochondrial disease patient.
Their stereotyping almost cost me my life during and after the COVID-19 pandemic!!
Events and Activities
Our Goal Is to Educate You About Living with Mitochondrial Disease as a BIPOC person through
Fitness & Nutrition Classes
Roundtable Discussions
Health Consultations
Self Care Sessions
Wellness Workshops
Product Launches
Meet the Founder
Sylvia is a formally trained epidemiologist, former NASA engineer, and former Public Health Research Associate Professor. She suffers from at least two rare diseases not normally identified with African Americans. For over 40 years, she has worked on the intersections of race, environment, and health disparities, publishing several books and leading an international journal on environmental justice.
Sylvia Hood Washington. PhD, ND, MSE, MPH, CLT-LANA
One Drop Rule Rare Disease Founder and CEO
https://www.facebook.com/drsylviahoodwashington/
https://www.youtube.com/channel/UCCNLtdoHp4DRPsTr9oZVgxQ